Community Voices
Leo’s Amyloid Cardiomyopathy (ATTR-CM) story
Leo’s Story – Living with ATTR Wild-Type Amyloidosis Hi, my name is Leo and I am living with ATTR wild-type amyloidosis. It is a rare disease where abnormal proteins called
Jessie’s Hypertrophic cardiomyopathy (HCM) story
1. Introduction. Hello! My name is Jessie and I have hypertrophic cardiomyopathy. 2. What led to your diagnosis? What has happened since then? Growing up, I was very active
Miranda’s Dilated cardiomyopathy (DCM) story
I was 21 when I was diagnosed with Dilated Cardiomyopathy DCM. I was breathless, was putting in fluid weight, and was struggling to walk in a flat surface. My father
Mel’s Takotsubo cardiomyopathy story
Takotsubo Cardiomyopathy often begins with an intense emotional event but I call my experience ‘a perfect storm’. I was a single mum, working full time from home, managing an extreme
Chloe’s Hypertrophic cardiomyopathy (HCM) story
My name is Chloe, I am a 38-year-old mum, wife, step-mum, aunty, dog mum, and small business owner. When I was 27, I was diagnosed with Hypertrophic Cardiomyopathy (HCM –
Dianne’s Dilated cardiomyopathy (DCM) story
Hello. My name is Dianne, and I live in Ipswich, Queensland. I was diagnosed with Idiopathic Left Ventricular Cardiomyopathy in 2018. What led to your diagnosis? What has happened since
Ray’s Dilated cardiomyopathy (DCM) story
Hi I’m Ray. I was diagnosed with Dilated Cardiomyopathy in 2008, aged 66. My wife and I have two children and 4 grandchildren, and for years, with our son, we
Sue’s Dilated cardiomyopathy (DCM) story
My name is Sue, I am 76 and have one daughter and 3 grandchildren. I was diagnosed with dilated cardiomyopathy and heart failure 3 years ago. What led to your