Emotional Wellbeing
Emotional Wellbeing
A diagnosis of cardiomyopathy can feel overwhelming. Living with a heart condition affects more than your physical health. In the beginning, it is normal to feel afraid, uncertain or unsure about what the future holds. Many people also experience sadness, anxiety, or a sense of loss. These reactions are a natural part of adjusting to a significant diagnosis.
Coping Strategies
There is no single approach to emotional wellbeing, but some people find these strategies helpful:
- Talk about it – sharing your feelings with a friend, family member, or someone who understands can make things feel lighter.
- Take small steps – if life feels overwhelming, focus on one task at a time. ‘One day at a time’ is a good motto.
- Be kind to yourself – you are adjusting to change and it takes time.
- Stay active (under the guidance of your doctor) – gentle movement such as walking or stretching can help your mood.
- Do things you enjoy – small pleasures like reading, music or spending time with pets can provide a distraction and make a real difference.
- Get creative – however this works for you. Woodworking, craft, art. As Michelle puts it “You cannot be creative and anxious at the same time”.
- Many newly diagnosed patients say they don’t recall their cardiologist’s words. Many find it helpful to have a list of questions that you can share with your doctor. It can also help to take a trusted friend or relative to your appointment to help you recall the information provide, or else to take a notebook/ipad to write down the information.
Be aware that your emotional wellbeing also includes looking after yourself, including ensuring you are eating and drinking well, and getting enough sleep. If you drink alcohol, check what’s safe with your doctors. Ensure you take any prescribed medication. This will all affect your emotions.
Support from People Who Understand
Many people find it comforting to talk with others who know what it is like to live with cardiomyopathy. CMANZ offers:
- Online Support Group (Facebook) – a safe and welcoming space to share experiences and ask questions.
- Peer Support – we can connect you with someone who has similar experiences for one-to-one support.
- In-Person Gatherings – held in some cities. For more information, email: info@cmanz.org.au
“Being part of the private Facebook group has given me access to others living with cardiomyopathy. My friends want to help but can’t really understand – it’s helpful to know there are people that do”. Cardiomyopathy community member
You may like to read the stories of others living with cardiomyopathy, Everyone’s path is different, but it can be helpful to find out how others have navigated their diagnosis.
Resources
- Books: The Happiness Trap (Russ Harris); Living Well with Chronic Illness (Toni Bernhard); Healing the Heart (Norman Rosenthal).
- Apps: Smiling Mind; Insight Timer; MoodMission; Headspace (for 12-25years );
- Websites: Heart Foundation My Heart My Life program. Black Dog Institute; ReachOut (for young people and parents/carers).
We provide these resource options as examples of things others in our community have told us they have found helpful (while recognising what suits one person will not suit another).
Grief and Loss
Grief is not only about bereavement. Many people living with cardiomyopathy grieve for the life they had before, for their energy, freedom or independence, or for the impact on their relationships. These feelings are valid. Grief has no rules and no set timeline. It may feel heavier on some days than others. Finding ways to acknowledge and share these feelings can help.
If you have lost someone to cardiomyopathy, the grief may be profound. It can bring shock, confusion, sadness and loneliness. These reactions are normal, and do not follow any timeline. The following resources may offer support.
Australia
- Griefline — a free national grief and loss service providing phone support, online counselling and community forums.
https://griefline.org.au - NALAG (National Association for Loss and Grief) — offers free support for all types of grief, including loss related to illness, disability, relationships and bereavement.
https://nalag.org.au
New Zealand
- The Grief Centre — provides counselling, support groups and resources for people experiencing any form of loss or major life change.
https://www.griefcentre.org.nz - Skylight Trust — offers information, counselling and resources for grief, loss of health, and life transitions.
https://www.skylight.org.nz
Professional Support
There is no shame in seeking professional support – it is a very normal step to take when facing a heart condition. Many with cardiomyopathy feel that professional care in this area is as important as care from their cardiologist!
“When I was diagnosed I lost touch with who I was and got low and sort of angry about it. My partner suggested I see a professional and I took some convincing, but it really helps”. Brian
In Australia you can talk to your GP about a Mental Health Care Plan, which offers subsidised access to professional psychological support.
Free, confidential services include:
- Australia: Beyond Blue (1300 22 4636), Lifeline (13 11 14), Head to Health (headtohealth.gov.au).
- New Zealand: Need to Talk (1737, free call or text), Mental Health Foundation NZ, Lifeline Aotearoa (0800 543 354).
We Are Here for You
At Cardiomyopathy Australia New Zealand, we care about everyone in our cardiomyopathy community. Whether you need information, reassurance or someone to listen, we are here. You are not alone.
Email: info@cmanz.org.au