Newly Diagnosed
Being told you have cardiomyopathy can feel overwhelming. It’s normal to feel afraid, uncertain, or even isolated when first hearing this diagnosis. Please know you are not alone.
Across Australia and New Zealand, many people and families are living with cardiomyopathy. There is help, support and reliable information available to you and your loved ones.
Research is advancing quickly, giving us new knowledge about cardiomyopathy and leading to improved treatments and care options. Every year, progress is being made.
At Cardiomyopathy Australia New Zealand (CMANZ), we are here to support you. Whether you are looking for clear information, connection with others, or practical guidance, our community is ready to help you navigate life with cardiomyopathy.
We recommend you approach leaning more about your condition at your own pace. Keep talking to your GP and cardiologist, read the information here when you’re ready, and get in touch if we can help in any way. But most of all, give yourself time to adjust to your diagnosis.
We don’t recommend you look up your condition on the internet. There is a lot of outdated and incorrect information. If you’re seeking to learn more, we recommend only looking at credible websites. Those run by hospitals can be excellent, such as the Mayo Clinic, the Cleveland Clinic, and St Vincents Sydney. Our partner organisations on this website also offer trusted information.