Hello. My name is Dianne, and I live in Ipswich, Queensland.  I was diagnosed with Idiopathic Left Ventricular Cardiomyopathy in 2018.

What led to your diagnosis? What has happened since then?

I was waking each morning with a wheezy chest. This led to a doctor’s appointment and subsequent chest x-ray, which revealed dilation of my left ventricle.  I was then referred to a cardiologist who requested an ECG, echocardiogram and an angiogram; these showed I had an Ejection Fraction (EF) of 40.  At the time, I had experienced no symptoms apart from some shortness of breath when walking, which I had put down to being unfit.  It took some time to come to terms with my diagnosis and accept I would be living with it for the rest of my life.

I was commenced on medication which took approximately 12 months to provide maximum effect.  My EF is now 55 – 60 and I am now on yearly checkups with my cardiologist.

How does cardiomyopathy impact your life?

To be honest, I feel no different now I’m on medication than I did before being diagnosed. I feel blessed it was picked up early.  I don’t feel as though it has a big impact on my life however being aware of my condition, I make sure I keep up to date with influenza and covid immunisations.   I also wear a mask as a precaution if I am on a flight or am in close association with others.

Since learning of my Cardiomyopathy, I have travelled internationally and have not experienced any limitations on my activities during these trips.  I have learned so much about the disease both from my cardiologist and support group. 

How has cardiomyopathy impacted your relationships (partner/family/friends)?

Cardiomyopathy has not impacted my relationships with my husband, family or friends.  Life for me now is the same as before my diagnosis.

How has/can a patient support group assist?

Joining a support group has made me realise I am not alone; to have an opportunity to share my concerns with others who can relate is invaluable. It has also made me realise there are others living with Cardiomyopathy that have more significant health concerns than I. Lastly, If I can put someone’s mind at ease within our support group, I like to think I have made a difference.